Good afternoon,
I wanted to share some information with you from an email that I received.
"Hi,
I want to let you know that I admire what you are doing on this site for your daughter.I have a 3 year old son that has been on "veetids since birth",and I wanted to know will he ever be taken off? Or will the doctor put him on more medicine when he gets older?"
Just Curious"
Well, from my experience with my daughter, she was taken off the medicine about 8 months ago.We have experienced a lot of crisis that are managed by either intravenous meds or by mouth.This is a very effective but it's only temporary.She is now being prescribed hydroxeurea, this should cut her crisis down to half.I was very skeptical about this medicine, however after researching it, I feel that this is something that will help her.This is optional, the doctor did advise of the side effects, which are limited.I feel that this is a huge step in finding the cure because if this medicaine can minimize the crisis a child has it could possibly evole into a possible cure.Please talk with your hematologist for more options .
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Irish, I love what you are doing and I will continue to pray for and Mya. I do not have anyother words except I am proud of you.
ReplyDeleteAnthonita
Hi,
ReplyDeleteMy name is Tina and my daughter also has sickle cell.I really appreciate you creating this site for kids with this disease I want to let you know that I have been giving out the flyers that you gave me.Thanks for taking a stand!!!!