There is Hope

Good afternoon,
I wanted to share some information with you from an email that I received.

"Hi,
I want to let you know that I admire what you are doing on this site for your daughter.I have a 3 year old son that has been on "veetids since birth",and I wanted to know will he ever be taken off? Or will the doctor put him on more medicine when he gets older?"

Just Curious"

Well, from my experience with my daughter, she was taken off the medicine about 8 months ago.We have experienced a lot of crisis that are managed by either intravenous meds or by mouth.This is a very effective but it's only temporary.She is now being prescribed hydroxeurea, this should cut her crisis down to half.I was very skeptical about this medicine, however after researching it, I feel that this is something that will help her.This is optional, the doctor did advise of the side effects, which are limited.I feel that this is a huge step in finding the cure because if this medicaine can minimize the crisis a child has it could possibly evole into a possible cure.Please talk with your hematologist for more options .

Sickle Cell Walk On May 2,2009

It's that Time of the year to walk for Sickle cell disease.The date is going to be May 2, at Kelly Ingram Park from 8am until 12pm.The registration is 15.00 dollars for childeren and $25.00 dollars for adults.There will be plenty of live entertainment,Food, Fun and MORE!!!!!!!!! for more details call
Sickle Cell Foundation @ 780-2355.

SEE you There!!!!!!!!!!!

Meet Me

Hi, my name is Amiya and I am seven years old. I love to go to school and play on my lap top.I have sickle cell and it is something that makes me sick at times.I love to ride my bike and one day I will be the first female quaterback.My uncle tells me to stick to being a ballerina but I loooove to play.My mom says that GOD made me this way because I am going to be his special little helper.If you would like to get to know me better leave me a message.Gotta go it is past my bedtime See ya

It was Hard But We did it

On April, 16 Amiya had a blood transfusion that was successful.She is doing much better and it has been a full week without any pain Crisis.."THANK YOU JESUS"! If you didn't know most kids with Sickle cell have transfusions often to replace/support their current blood cells that they have.
I have learned so much from her.She has taught me that where there is a will God will always make away.Each obstacle that she is faced she always smile and say"Mom it is going to be OK", It brings tears to my eyes each time.I encourage you to cherish every moment with the your loved one's.
I have a couple of pics

What Is Sickle Cell disease????????????

Sickle cell anemia (sickle cell disease) is a disorder of the blood caused by an inherited abnormal hemoglobin (an oxygen-carrying protein within the red blood cells). The abnormal hemoglobin causes distorted (sickled) red blood cells. The sickled red blood cells are fragile and prone to rupture. When the number of red blood cells decreases from rupture (hemolysis), anemia is the result. This condition is referred to as sickle cell anemia. The irregular sickled cells can also block blood vessels causing tissue and organ damage and pain.
Sickle cell anemia is one of the most common inherited blood anemias. The disease primarily affects Africans and African Americans. It is estimated that in the United States, some 50,000 African Americans are afflicted with the most severe form of sickle cell anemia. Overall, current estimates are that one in 1,875 U.S. African American is affected with sickle cell anemia.

A New Beginning

Let's start off with the purpose of the site and that's to educate and enlightened people on Sickle Cell Disease.On this site you will meet my angel,Amiya, whom has been struggling with this disease since birth along with others whom has a continous struggle from day to day.

I will have updates of her condition along with information on different resources in your area.

http://www.sicklecelldisease.org/index.phtml

http://sicklecellbham.org/